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 My Health Record: Your questions answered
Flin
 Posted: Jul 15 2018, 09:17 AM
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My Health Record: Your questions answered on cybersecurity, police and privacy
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Every Australian will soon have a My Health Record — an online summary of their health information — unless they opt out over the next three months.

From Monday, Australians will have until October 15 to tell the Government they don't want one. Otherwise, a record will automatically be created.

The project aims to give patients and doctors access to timely medical information — test results, referral letters and organ donation information, for starters — but there are concerns about the safety of some of our most personal, sensitive data.

We asked for your questions about the project on social media, and they ranged from police access to the platform's cybersecurity.

The ABC sat down with Tim Kelsey, the head of the Australian Digital Health Agency (ADHA) and the man in charge of the initiative, to get them answered.
The way the record works
As a patient, how can I know if my My Health Record information is being maintained by my doctor?

You can choose to opt out and have no My Health Record.

But once you have one, doctors can upload health information into it unless you ask them not to.

user posted image

When you see a doctor, you can discuss adding (or not) documents such as an overview of your health, a summary of prescribed medications and referral letters.

Remember, it's not a comprehensive picture of your health — it will only contain what you and your doctors choose to upload, and will depend on the quality of those records.

When you first access the system, you'll be asked to decide whether you want two years of Medicare Benefits Schedule, Pharmaceutical Benefits Scheme, Australian Immunisation Register, and Australian Organ Donor Register data to be uploaded.

But if your doctor accesses your record first before you make the selection yourself, this data will be uploaded automatically — unless you've opted to have no record at all.

If you want, you can delete or restrict access to those documents later.

Not all Australian hospitals and health services are connected to My Health Record yet, so that's something to check during your next visit.
When I get a prescription, how do I know whether I need to ask to make an update to my My Health Record? Does this vary by provider?

Doctors can upload information about prescribed medications, but as discussed above, it's worth discussing this each time you see your doctor.
What happens to your My Health Record after you die?

My Health Record information will be held for 30 years after your death. If that date isn't known, then it's kept for 130 years after your birth.

Will any private health insurance companies have access?

Insurers shouldn't be able to access your record — it's reserved for people who work for a registered healthcare provider and who are authorised to provide you with care.

There are plans to use aggregated, anonymised My Health Record data for research and other purposes — this is known as "secondary use".

"My Health Record information can be used for research and public health purposes in either a de-identified form, or in an identified form if the use is expressly consented to by the consumer," a Department of Health spokesperson said.

Currently, users of the platform can tick a box on the web portal to opt out of secondary use.

Secondary uses must be of public benefit and cannot be "solely" commercial, and insurance agencies will not be allowed to participate.

However, "the impact of this exclusion" will be considered when the Department of Health's framework governing secondary use of My Health Record data is reviewed, according to the framework document.

Australian organisations (and some overseas, in certain circumstances), including Australian pharmaceutical companies, will be able to apply to access My Health Record data for approved secondary purposes.

"We don't expect any data to flow until 2020," Mr Kelsey added.
The opt-out period

How can I opt out?

There are three key ways:

By visiting www.myhealthrecord.gov.au and opting out using the online portal.
Over the phone by calling 1800 723 471.
Or on paper by completing a form and returning it by mail. Forms will be available in 2,385 rural and remote Australia Post outlets, through 146 Aboriginal Community Controlled Health Organisations and in 136 prisons.

What happens to the people who end up with a My Health Record, and then decide to opt out?

If you don't opt out between July 16 and October 15, then a record will be automatically created for you.

After October 15, there will be a "one-month reconciliation period" before new My Health Records are registered. These new records will be created mid-November.

You can then cancel that record, but the data it contained will still exist (although inaccessible to you or health providers) until 30 years after your death.


Can technology be trusted to track our mental health?
Is a record automatically generated if a doctor uploads a document during the opt-out period, even if you did not create one yourself?

According to the ADHA, doctors can't upload any clinical documents to the My Health Record system unless the patient record exists.
What about children who aren't born yet — can they opt out?

After the opt-out period, newly eligible healthcare recipients, such as newborn children and immigrants to Australia, will be given the chance to elect not to have a My Health Record as part of their Medicare registration.
Protection of your data
Which service provider will manage the infrastructure to ensure it isn't vulnerable to a cyber-attack?

The platform was built by the technology provider Accenture, however the ADHA is starting discussions about "re-platforming" it.

Independent third parties audit the system's security and undertake penetration testing, according to Mr Kelsey, but security experts warn that it's impossible to make any online database entirely bullet proof.

Remember too, that documents created or downloaded by your doctors may be stored in their local IT system too and depend on that system's security.
If a doctor downloads files from My Health Record, what's to stop her from sharing those files within the practice?

By default, your online documents will be accessible to your healthcare providers.

If you have privacy concerns, you can log onto My Health Record and restrict who sees it:

You can set a Record Access Code and give it only to healthcare professionals you want to access your record.
If you want to restrict certain documents, you can set a Limited Document Access Code.

These controls may be overridden in an emergency.

As mentioned above, if a document is removed from the My Health Record system, it's beyond the reach of your access controls.
If a GP were to allow another staff member to access a record, what is the potential punishment?

If someone accesses your My Health Record without legal authorisation and the person "knows or is reckless to that fact", criminal and civil penalties may apply.
Where can users see information about who has accessed their record?

My Health Record users will be able to see who has looked at their record by checking its access history online.

They'll be able to see when it was accessed, which organisation accessed it and what was done — documents being added, modified or removed, for example — but not the individual doctor who accessed it.

You can also set up an email or SMS alert for when a healthcare organisation accesses your record for the first time.

The privacy commissioner recommends checking regularly for unexpected or unauthorised access. You can call the ADHA on 1800 723 471 if you think something's gone wrong.
Several apps can connect to My Health Record. How will the ADHA ensure they are secure?

Apps such as Healthi and Health Engine, which recently ran into trouble, are authorised by the ADHA to "show" people their health record.

According to Mr Kelsey, third party app developers can only display your My Health Record — "at the moment, it's view-only" — and cannot store that data.
http://www.abc.net.au/news/science/2018-07-15/my-health-record-questions-answers-security-privacy-police/9959622

I don't like the sound of this.
There are far too many leaks and hacking of information on the net so I have zero confidence my information will be secure.

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scepo
 Posted: Jul 15 2018, 09:32 AM
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I'm thinking I'll opt out of this one.

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Alicia
 Posted: Jul 15 2018, 09:33 AM
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I hope it won’t be sold to, or outsourced, to yet another chinese company. We also know that rules are made to be broken. I suppose we need to weigh up our physical safety against the possibility of access by insurance companies, potential employers, lawyers and such entities which would be adverse to our interests. http://files.jcink.net/uploads/fairdinkumnewschat/062d0ab5-bill.gif http://fairdinkumnewschat.b1.jcink.com/uploads/fairdinkumnewschat/lbill.gif http://fairdinkumnewschat.com/rolleyes.gif
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Bill
 Posted: Jul 16 2018, 12:15 PM
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My doctor told me not to bother registering some time ago because the system was in its infancy. He may have changed his mind, so I'll ask him again at my next appointment. ATM he has access to my recent hospital records because I asked them to send him a copy.

On the bright side, in the future, we can call My Health Record and talk to a lovely young lady in Manilla. http://fairdinkumnewschat.com/biggrin.gif http://fairdinkumnewschat.b1.jcink.com/uploads/fairdinkumnewschat/lbill.gif

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Bear
 Posted: Jul 23 2018, 07:27 PM
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Good advice is to 'opt out' we have already done so - nothing you post online is safe, even the man TB asked to 'transform' the Commonwealth's digital public services has said that he would "probably opt out".

The man appointed by Malcolm Turnbull to transform the Commonwealth's digital public services has said if he was Australian he would probably opt out of the Government's controversial online health database.

From this week, Australians have three months to opt out of My Health Record, which gives people an online summary of their health information.

But privacy advocates have ramped up their attacks on the database and are urging Australians to steer clear of it.

Paul Shetler, the former head of the Government's Digital Transformation Agency, is not an Australian citizen but told the ABC if he was he would "probably" withdraw from My Health Record.


http://www.abc.net.au/news/2018-07-18/my-health-record-former-digital-transformation-boss-has-concerns/10006788


A number of job seekers have had some of their information taken - how much information has not been revealed.

Part of an email a job seeker recently received.


Federal Group takes your privacy very seriously. Like many organisations in Tasmania, Federal Group is currently responding to a potential data breach at PageUp, who provides online recruitment services to the Federal Group and its subsidiaries. We regret to inform you that some of your personal data, maintained by a vendor that supports some of our hiring and HR services, may have been accessed by an unauthorised third party.

What happened?

On 23 May 2018, the vendor identified unauthorised activity on its IT infrastructure and promptly took steps to contain the incident and engaged law enforcement and third party cybersecurity experts to investigate. While the vendor’s investigations continue, on the balance of probabilities, some of your personal data may have been accessed without authorisation.

What information may have been impacted?

The affected vendor databases contain data from current and former employees, agency contacts, applicants of Federal Group or its subsidiaries and referees of those applicants.

We have been informed by the vendor that the current results of its forensic investigations are that mainly non-sensitive data sets have been affected. In relation to Federal Group’s data, there is no evidence that sensitive data categories (such as financial information) have been affected.


This post has been edited by Bear: Jul 23 2018, 07:29 PM

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charka
 Posted: Jul 23 2018, 09:16 PM
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look what telstra did
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Flin
 Posted: Aug 1 2018, 08:58 AM
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Health Minister backs down on My Health Record

Federal Health Minister Greg Hunt has bowed to pressure and agreed to tear up the controversial legislation behind the My Health Record to protect patients from having their medical records accessed by police.

Following crisis talks with the head of the Australian Medical Association in Melbourne on Tuesday night, Mr Hunt confirmed in a statement that the My Health Record Act will be redrafted.

"The amendment will ensure no record can be released to police or government agencies, for any purpose, without a court order," the statement said.
https://www.brisbanetimes.com.au/politics/federal/health-minister-backs-down-on-my-health-record-20180731-p4zuqo.html

We are governed by idiots.
Hunt should have been fired after his bad mouthing of Katherine Mayor Fay Miller .
http://fairdinkumnewschat.com/mad.gif

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Bear
 Posted: Aug 1 2018, 05:34 PM
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Greg Hunt is another overpaid politician who continues to make bungles, TB should sack the fool.

My Health Record Act will be redrafted.

At what cost to the Australian taxpayers! http://fairdinkumnewschat.com/mad.gif

--------------------
Politicians and diapers should be changed frequently and all for the same reason.

~José Maria de Eça de Queiroz,

We live in a world in which politics has replaced philosophy. ~Martin L. Gross, A Call for Revolution, 1993

"Stupid people are like glow sticks: I wanna snap em and shake the shit outta them till the light comes on."
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charka
 Posted: Aug 1 2018, 09:51 PM
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im out
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